CAPSConnectsUs.com brings people together and provides information you need to become a stronger link in the chain of people affected by Cryopyrin-Associated Periodic Syndromes (CAPS). CAPS are a group of rare genetic diseases that affects only 1 in 1 million people.
Learn more about CAPS diseases by sharing in one man's experience with CAPS.
Connect with the CAPS community
We can help you make all the right connections.
When I was a child, I suffered in silence with this condition, known to me only as "cold bumps". It "
— A CAPS connected patient from North Carolina
I am 52 and have lived with fcas for all my life. I just found out what I had 4 years ago. My two out"
— A CAPS connected patient from Iowa
I am the mother of a 15 year old boy that has had symptoms of Muckle-wells since approx. 2 mths old"
— A CAPS connected caregiver from Kentucky
The most common subtype of CAPS in the United States.
Learn what causes this subtype of CAPS, and what can trigger symptoms.
Learn how NOMID can affect your child.