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NOMID Symptoms and Diagnosis

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In Neonatal-Onset Multisystem Inflammatory Disease (NOMID), people almost always experience symptoms at birth. In a newborn, the physical features of NOMID are often more noticeable than in the other 2 subtypes of Cryopyrin-Associated Periodic Syndromes (CAPS), so a doctor may be able to diagnose NOMID quickly.

Duration of NOMID symptoms

It is unknown why NOMID symptoms flare up, but this type of CAPS is very serious. Symptoms are constantly present, and when they worsen, they can be disabling. Without NOMID treatment, they can be extremely serious.

Getting help with NOMID

It is clear to parents how much their children with NOMID suffer. From the moment they are born, it is a constant battle to keep NOMID from getting worse.

For patients with any subtype of CAPS, especially those with NOMID, who need additional support, there are CAPS resources that can help.